Estonian Muscular Dystrophy Association (ELS)

ELS is an organization whose goal is to improve the quality of life for people with muscular diseases. There are many ways to achieve this goal: we support our members with our experience and advice, share information about both the disease and coping strategies, organize events that broaden horizons, and offer the opportunity to get involved in the association’s day-to-day work. A good sense of humor is an integral part of our shared activities, and every member of our “family” is accepted just as they are.

Hey young or young at heart!

In this club, you’ll find peers your own age who share your interests. There’s no shortage of enthusiasts here with whom you can hatch all kinds of plans or discuss world affairs. Warning! You’ll soon be dragged out of the house!
As someone who prefers their own company, you might find someone who listens, thinks along with you, and—most importantly—doesn’t get on your nerves.

Important message for seniors

Members of the association share their experiences and coping skills with both other members and officials from various fields. When it comes to rare diseases, your experience with how you’ve coped in crisis situations is invaluable to us. Don’t keep your life experiences to yourself—come share them with us!

For parents and supporters

Feel free to direct your questions to the association’s board; if we don’t have an immediate solution to the problem you’ve raised, we’ll look for the resources and ways to find one. We stand up for our members’ rights and for ensuring that all people with muscular diseases can live a full life. The problems solved today will be a thing of the past tomorrow.Come join us and let’s make the world a better place!

Membership fee

As of January 1, 2018, the membership fee is 5 euros for individual members and 8 euros for families.

Click here to open the registration form .

For us, there is no such thing as being in too poor physical condition; there is only an inadequate lifestyle. To improve the lives of people with disabilities, we collaborate with three umbrella organizations:the Estonian Chamber of People with Disabilities (EPIK), the Union of Non-Governmental Organizations (VÜL), and the Estonian Union of People with Mobility Impairments (ELIL). We are open to challenges from various interest groups. We plan and implement projects aimed at both shaping societal attitudes and boosting individuals’ self-confidence and self-awareness. Through our efforts, several progressive ideas have reached Estonia and taken root here, such as the independent living movement and electric wheelchair floor hockey.

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